Mike was really discouraged. So I packed up the kids and we all went to them. I think it was good for everybody's hearts.
I've had a really hard time watching Samuel deteriorate. I feel like I'm looking at a cancer patient and not my son. His face is bloated. His head is bald. He's losing his eyebrows and eyelashes. It literally sickens me. But then we'll have a moment where he will lean towards me and say, "I love you Mama." And I remember that it is Samuel. A changed Samuel. But still my boy.
Trying to manage the chaos. But I am blessed. I have had a lot of support and help even when Mike has been gone. I feel a lot better than I have been. I'm tired...of course :) BUT I am not in pain and feel more myself.
Peter has caught up with his weight! He gained 7 oz. in 7 days. The doctor is thrilled and I don't need to bring Peter back until his 2 months appointment.
I had all these deep and profound things to write and post about... but when it comes time to actually have a moment... it all slips away. So, there's a little update for now.