The home health people came by 3 times today. The first time to drop off the pump equipment. The second time to drop off the apnea monitor. The third time to give us the suction machine. A bit wild. I feel like I got a lot of training today. Tomorrow morning we go in for CPR training and then I will stay and "room-in" with Michael. It should prove to be interesting.
I brought his car seat in tonight for his car seat test. That's such a good sign. I can tell you right now that we will NOT be at church this week-end and probably not the next either. Michael can't be moved around a lot. He had a huge apnic (stop breathing) episode last night and was throwing up and choking (due to his reflux).... so we shouldn't move him during feeds and his feeds run 90 minutes on, 90 minutes off. Crazy. It was fun to snuggle him though and I look forward to him coming home.
Have to figure out what to do about cribs. Nurses highly recommend it because of his difficulties and needs and they said separate might be necessary because of Michael. Hmm... two cribs at one time.... this could get pricey. We're also probably going to need to move the rooms around.... hmmm... interesting.
Please think and pray for us. Lots of stuff needs to happen. We need to purchase some things for Michael and move things around and get all his meds straightened out. Etc. And learn how to care for him while looking after the other 3.
I might be MIA for a while......