Wednesday, July 16, 2008

A tough decision.

So we're in the process of making a big decision.  Should Michael get this surgery done (the Nissan Fundus-plication surgery) or should we get a "g-j tube" put in.  A g-j tube is a gastric-jujunum (sp) tube.  It's like the g-tube except it feeds into the intestines... like his in-d tube but without having to go down his nose and throat... it would enter through the g-tube.  Make sense?

There is a lot to be considered.  The Nissan (prouncounced "ness-en") is a MAJOR surgery which could have some very serious side-effects and problems.  I won't list them all because it's near midnight and I need sleep.  If it works correctly it would stop the reflux which would in turn stop the apneas.  But if it goes wrong there's a lot of problems it could cause.  The g-j tube is NOT a permanent solution... it's temporary.  Now, he might outgrow the reflux a little... or at least enough that he wouldn't need the surgery or he might not.

Anyway, there's too much to put down here.  Just pray for us- that God would give us, the surgeon, the specialists, and others involved wisdom to make the right choice.  It's overwhelming.

Today was a great day by the way.  Alexis came over and helped me with the kids.... and we even took all four of them out!  She stayed in the car with Libby and Samuel and they watched the land before time while I took the twins upstairs to the doctor's.  We also braved Starbucks today.  We were brave.  It was chaos.  Sweet chaos.  Alexis describes it as crazy, fun, and frustrating... that's it in a nut shell :)  Samuel was running EVERYWHERE. Ian was crying (needing to be nursed).  Libby was upset because I took the straw off her drink.  Yeah, I'm crazy.  A friend bought me a notepad that I love: "I'm not suffering from insanity, I'm enjoying every minute of it."  So true.

We picked up dinner at Chick-fil-A... so fun and put the kids down early-ish and then enjoyed paper crafts projects and Princess Diaries.  Thank you Alexis!

Well, to bed.  To bed.  sleep awaits.


Sarah said...

Hey sweetie! Praying for you guys as you make tough decisions and enjoy the mayhem of four little ones at Starbucks - that you would have God's wisdom and peace for both!!! Big hugs xxx

Caren said...

Jen, I'm praying for you. I know God will show you the right way to proceed. Just keep your eyes on Him. :) I love you!

Anonymous said...

check out comment on the 14th. Aunt Barb & Grandmother

Anonymous said...

Love you. Praying for you guys.

AmyB said...

Thanks as always for keeping us all up to date...we are praying for you guys! Many hugs and much love to you all!

Billie said...

Read this today and thought of you.

Luke 6:20-21
"And he lifted up his eyes on his disciples, and said:
"Blessed are you who are poor,
for yours is the kingdom of God.
"Blessed are you who are hungry now, for you shall be satisfied.
"Blessed are you who weep now,for you shall laugh."

Praying for you.

Anonymous said...

This encouraged me a lot today and hope it will you too. I called to God, to my God I cried out. From his palace he heard me call; my cry brought me right into HIS presence---a private audience! (Wow!!)....
But me He caught--reached all the way from sky to sea; He pulled me out ....the void in which I was drowning....God stuck by me. He stood me up on a wide-open field; I stood there saved---surprised to be loved!

God made my life complete when I placed all the pieces before Him. When I cleaned up my act, He gave me a fresh start. Indeed, I've kept alert to God's ways; I haven't taken God for granted. Every day I review the ways He works, I try not to miss a trick. I feel put back together and I'm watching my step. God rewrote the text of my life when I opened the book of my heart to His eyes.

You stick by people who stick with you, you're straight with people who're straight with you. You're good to good people, you shrewdly work around the bad ones. You take the side of the down-and-out, but the stuck-up you take down a peg. Suddenly, GOD, your light floods my path, God drives out the darkness. I smash the bands of marauders, I vault the high fences. What a God! His road stretches straight and smooth. Every God-direction is road-tested. Everyone who run toward him Makes it."
Faithful is He who called you. God guaranteed His covenant with you....spelled it out plainly and He will keep every promised word. You are seeking HIM. He will direct your path.
Prayerfully loving on you all

Anonymous said...

Oops. Something happened and did not show that the above comment was from 2 Sam. 22 from the message. I also found David's heart expression the same in Ps 18 this morning as I read it in the Amplified. Isn't God so good to speak to us when we need Him so desperately. All comfort and encouragement comes from His hand....not just people's good ideas....but from Him.... just loving on us.