Okay, so you might have known that I had a post (yesterday) and it disappeared. It's being edited. Anyway, I am at the hospital with michael (CHKD). We are still here and will be here again overnight. The doctors are still trying to discuss an action plan. His "blue spells" were so out of the blue. there is no cause/effect going on here. We're still trying to figure out what to do. There is some talk about "layrngo-spasm" which would cause temporary obstruction and would affect his breathing.

My internet access hasn't been working at CHKD. So the updates are sketchy. I will try and keep you posted.

He had a fever yesterday of over 101 and it broke yesterday. He's been happy and cheerful today. He did fine overnight and hasn't had an episode since last evening.


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